this is the first person link from 27 June 2002 from Carolyn Benivegna about her advocacy education group subsequent to her illness and recovery:
http://ovariancancer.jhmi.edu/stories2.cfm?personID=15&order=alpha
It is hosted at Johns Hopkins, an NCI designated cancer center, under personal stories.
Another source of info is the gov't run 1 800 4 cancer at NIH .
Our gov't does a wonderful job in providing info on cancers, standard treatments, and opportunities to participate in trials.
This is a year 2000 update: http://www.baymoon.com/~gyncancer/library/blcarolyn2.htm
that corrects the record. CA-125 is not a screening test akin to the PSA for men.
Here's a link from snopes with the original, erroneous note from Carolyn:
http://www.snopes.com/medical/disease/ca125.asp , written in the name of Kathy. The Mikkelson's have included a link to an undated informational article from Johns Hopkins:
http://web.archive.org/web/20060421224244/http://ovariancancer.jhmi.edu/ca125qa.cfm
The take-home message is to know the symptoms and where to take these for getting a diagnosis.
The other take home message is to understand how easily unhelpful information can spread on the internet: http://www.google.com/search?sourceid=navclient&ie=UTF-8&rlz=1T4SNYC_enUS311&q=ca-125+snopes
This article contains criteria for evaluating whether a test is reliable and predictive enough to be a screening test: http://www.blackhealthcare.com/BHC/Articles/Article5a.asp